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Living with Chronic Inflammatory Demyelinating Polyneuropathy
This is real life for me. It’s not always fun. It takes a village. My mom has the boys while I am here for 3 days getting IVIG treatment for my CIDP. She drove me here, and will pick me up when I’m done. My kids don’t understand why I have a needle in my arm. Or why I’m at the doctor for so long. Or why my medicine is going in my arm.
But I do know that this $30k bag of magic will help me get stronger. It will help me get off meds that have been causing more side effects than actually helping overall. And I am very, VERY grateful for blood donors, because without them, I wouldn’t have brand new antibodies to help me get stronger.
“Team Jackie” is what we named anytime we rally together and get me where I need to be and make sure the boys are being taken care of. John knows that when I am done, I will sleep the rest of the day away. So he steps up and does dinner, baths and bedtime. My mom, bless her heart, chauffeurs me around and is happy to do it.
While I do love to keep things light and refreshing on my little piece of IG, this is real life for me. No filters. No highlight reels. I’m comfy in this chair, reading a book, shopping for deals, and resting, while they take my blood pressure and vitals every 30 minutes. And share this space with other patients getting infusions just like me.
Happy Friday eve, everyone! In case you’re wondering where my tshirt is from, it’s @thelapisboutique, my little Etsy shop. And I am LOVING that I stocked up on joggers from @oldnavy to keep me warm and cozy.
Tshirt linked here – Linked in @liketoknow.it in bio or check out my Etsy page HERE.
#reallifestories #reallife #thisismotherhood #thisischronicillness #livingwithchronicillness #livingwithcidp #donateblood #invisibledisability #cidpwarrior #chronicillnesswarrior #momtruth #lifeasamama #lifewithadisability #livingwithadisability #momlife #momlifeunfiltered #momlife❤️
For more information on CIDP, go here and learn more. Donations are always appreciated as this is such a rare illness and research is still needed.
Cheers,
Jackie
