Ok. Truth time. Confession time. I have a chronic illness. I have CIDP, Chronic Inflammatory Demyelinating Polyneuropathy. In simple terms, my body is attacking my nerves. Think of your nerves like an old school telephone cord (you know the curly ones you used to stretch to talk to your friend inside your closet for privacy). And the plastic coating on top of the cord is your myelin. My body is ...
Spoon Theory – Living with CIDP
Spoon Theory - Living with CIDP This week has been tough. Really tough. I had a 7-hour infusion on Wednesday. My mom had the boys ALL. DAY. It was the longest I have been away from them since pre-COVID. It was the longest I was away from my home, my bed, John. It was so lonely. I thought I would appreciate the quiet and alone time. To read my pile of unread magazines. To catch up on my texts, ...
Recovering…
Living with Chronic Inflammatory Demyelinating Polyneuropathy This is real life for me. It's not always fun. It takes a village. My mom has the boys while I am here for 3 days getting IVIG treatment for my CIDP. She drove me here, and will pick me up when I'm done. My kids don't understand why I have a needle in my arm. Or why I'm at the doctor for so long. Or ...
